OUR VISION

We envision a world in which pain is treated equitably and effectively, so that all people in pain can lead full and productive lives.

ABOUT NPAC:

Our mission is:

to advance the health and human rights of people in pain.

We are:

an alliance of scientists and clinicians, civil rights advocates and people with lived experience.

We will transform:

the mindsets, systems and policies that pose barriers to the health of people living with pain.

We joined forces:

when we saw well-intended efforts to stem opioid prescribing resulting in patient harm. 

 

WE VALUE

Equity & Inclusion.

Pain can affect anyone, but some groups are more likely to experience it or face greater barriers to care. Pain is a women’s rights issue, a racial equity issue, a disability rights issue, an older persons’ rights issue, and a human rights issue.

Integrity.

Integrity and ethics are core to our mission. We pledge to take no pharmaceutical industry or other funding that may create actual or perceived conflicts.

Science, Not Stigma.

Scientific evidence drives our work. We believe stigma arises from poor scientific understanding of pain.

Community.

We believe people with pain should be seen and heard. People with pain are represented at every level of our organization. 

Dignity & Solidarity.

While our focus is pain, we believe that both people with pain and people with addiction deserve effective care with dignity.

 

NPAC is a policy-focused advocacy group working for systems level change. Unfortunately, we cannot do case work for individual patients nor intervene with their doctors

 

OUR FOUNDER AND EXECUTIVE DIRECTOR

 

Kate Nicholson

FOUNDER + EXECUTIVE DIRECTOR

kate@nationalpain.org

Kate Nicholson, JD, is a civil rights attorney and a nationally-recognized expert on the Americans with Disabilities Act (ADA). She served in the U.S. Department of Justice for 18 years, where she litigated and managed cases, coordinated federal disability policy, and drafted the current ADA regulations. Kate developed intractable pain after a surgical injury left her unable to sit or stand and severely limited in walking for nearly two decades. 

 

OUR BOARD OF DIRECTORS

 

Juan M Hincapie-Castillo

PRESIDENT

juan@nationalpain.org

Juan M. Hincapie-Castillo, PharmD, MS, PhD is an assistant professor of Epidemiology at the Gillings School of Global Public Health at the University of North Carolina (UNC) at Chapel Hill. He is also a faculty member at the UNC Center of Pharmacoepidemiology and the UNC Injury Prevention Research Center. Recently, he received the 2020 New Investigator Award from the American Association of Colleges of Pharmacy and the 2020 Emerging Leader Award from the International Society for Pharmacoepidemiology.


Dawn Gibson

SECRETARY

dawnmgibson@gmail.com

Dawn Gibson entered health advocacy in 2011 and founded the acclaimed twitter chat group, Spoonie Chat, in 2013, growing it into a thriving community of mutual support, friendship, solidarity for patients, and a place for medical students and clinicians curious to hear directly from patients. Dawn lives with Ankylosing Spondylitis.


Julie Reiskin

TREASURER

jreiskin@ccdconline.org

Julie Reiskin, LSCW has been Executive Director of the Colorado Cross-Disability Coalition (CCDC) since 1996. CCDC is the premiere organization in Colorado advocating for disability rights. Its mission is to advocate for social justice for people with all types of disabilities. As a wheelchair user with Multiple Sclerosis, Julie is deeply concerned about the laws limiting access to pain treatment and medication and their disparate impact on members of the disability community.


Lindsay Baran

lindsaybaran@gmail.com

Lindsay Baran, MS is a Research Director at NORC at the University of Chicago in the Health Care Evaluation Department. Her work focuses on health equity, stakeholder engagement, disability accessibility, and program evaluation. Prior to NORC, Lindsay worked for over 15 years in disability policy, advocacy, research, and service provision, most recently as the Policy Director at the National Council on Independent Living (NCIL), a national grassroots disability rights organization. At NCIL, Lindsay worked with policymakers, partner organizations, and stakeholders across the country to coordinate and implement NCIL's legislative and advocacy activities, and she started and co-chaired NCIL’s Chronic Pain/ Opioids Task Force along with NPAC’s Kate Nicholson.


Laura Mills

lauraphylmills@gmail.com

Laura Mills is a human rights researcher and advocate. She previously worked at Human Rights Watch, where she conducted research on the right to health, disability rights, and older person’s rights in the US, Russia, Ukraine, and Central Asia.

In 2018, for Human Rights Watch, she authored a 99-page report, Not Allowed to Be Compassionate: Chronic Pain, the Overdose Crisis, and Unintended Harms in the US, which highlighted the impact of restrictive policies and practices on chronic pain patients.


Ola Ojewumi

oojewumi@gmail.com

Ola Ojewumi is an activist, writer, speaker, and non-profit founder. She is also a double organ transplant (heart and kidney) and cancer survivor. As a result of her health issues, Ola became a wheelchair user who suffers from chronic pain. As an advocate, she has advised the Obama Administration on policies to advance the lives of people living with disabilities, and she has held internships in the White House, with Congresswoman Nancy Pelosi, the Democratic National Committee, and Congressmen Albert R. Wynn’s Congressional Office.

 

OUR SCIENCE AND POLICY ADVISORY COUNCIL

OUR COMMUNITY LEADERSHIP COUNCIL

 

CONTACT

Press Inquiries
press@nationalpain.org

Policy Inquiries

policy@nationalpain.org

Other Inquiries

info@nationalpain.org

If you wish to speak to a science or policy expert, please reference
Our Network of Experts

If you wish to interview a person in pain, please reference our Community Council